Welcome to VIPeR!
It can be difficult for Canadians to find out about potentially life-saving clinical trials and research about Rare Diseases.
Do you want to stay informed about research in rare diseases?
VIPeR is a registry for people who have Rare Diseases or know somebody with a Rare Disease. VIPeR will contact registered members about new clinical trials and research about Rare Diseases.
Sign up for free to stay informed!
Do you have or know someone with a rare diseases?
There are thousands of Rare Diseases. Some examples of diseases include MPS Storage, Mitochondrial, Lysosomal, Phenylketonuria, Fatty Acid Oxidation, Angelman Syndrome and many, many more that have their own unique name.
If you are:
At least 18 years of age, a Canadian citizen with a Rare Disease, or somebody who knows a Canadian citizen with a Rare Disease (child or adult), consider registering in VIPeR.
Your information is kept confidential according to Health Canada regulations.
View our most recently consented conditions below:
CDKL5, CHAMP1, DLG4, Ehler Danlos Syndrome, Erythropoietic Porphyria, FRMPD4, Galactosemia, Giant Axonal Neuropathy (GAN), Mitochondrial Disease, Niemann Pick C, PKD1, RETT Syndrome, RYR1, SCN5A.
Who is Viper connected with?